Unlike a conventional sunburn, Izabella’s skin would react with a rash, and she would often feel overheated and unwell due to her undiagnosed condition.
She recalled: “When I was younger, we noticed that being out in the sun led to rashes and burns on my skin.”
“The uncovered areas would develop a painful, red rash of dots.”
She further explained: “I overheat easily, which can cause my body temperature to rise and make me feel unwell.”
Despite numerous visits to the doctor, it wasn’t until Izabella turned 21 that she was diagnosed with polymorphic light eruption (PMLE), an allergy to sunlight that can manifest even during cloudy or winter days.
According to the NHS, PMLE is a common rash, predominantly affecting women, and typically appearing between the ages of 20 and 40.
Upon receiving her diagnosis, Izabella felt a sense of relief as it provided clarity on her condition.
“I was 21 when I received my diagnosis. It took years of searching to understand what was happening,” she said.
To manage her condition, Izabella now uses a $1,300 face shield and helmet to protect her face from UV exposure and covers all parts of her body to minimize the risk of burning or rash.
Though constantly wearing a protective mask may require adjustment, Izabella is thankful for the ability it gives her to venture outside safely.
“This mask has transformed my life and made it possible to go out more often,” she shared.
“The first time I wore it to the park for a few hours without burning or developing a rash was uplifting.”
“I’m advised to wear it whenever I leave the house for protection, and I wear it as much as possible.”
Izabella mentioned that her mask sometimes draws stares and questions, with one person asking if she was an ‘astronaut’.
In response, Izabella said: “I agree it resembles an astronaut helmet, and I laughed it off. People are often surprised when I explain my allergy to the sun.”
There currently isn’t a cure for PMLE, but Izabella does have two ointments to use on her skin if exposed to sunlight.
“This allergy is something I must manage for life,” she said.
“Initially it was difficult, but now I see it as something that makes me unique. I just need to adapt and live with it.”